Ethical, legal and social issues in epigenetics (ELSI): Indigenous, national and global perspectives
The symposium, which took place on May 5th 2021, covers some general bioethical issues surrounding epigenetics research, including informed consent in the context of uncertainty, the ethics of genetic biobanking, privacy protection for genetic and epigenetic “big data,” and public education and engagement in the area of genetic and ancestry testing. However, the main focus is on the ethical, legal and social implications of epigenetics research as it affects Indigenous populations. Engaging Indigenous stakeholders in policy development and training geneticists and other health professionals in culturally aware practices, is essential for the benefits of this area of medical research to be shared equitably across populations.
This symposium brings together bioethicists, clinicians, epidemiologists, health lawyers, geneticists, medical educators and research students. Most importantly, invited speakers include representatives of Indigenous and other minority communities as primary stakeholders.
Presentations were recorded and are available on the symposium website to view on demand: