Ethical, legal and social issues in epigenetics (ELSI): Indigenous, national and global perspectives
The symposium will cover some general bioethical issues surrounding epigenetics research, including informed consent in the context of uncertainty, the ethics of genetic biobanking, privacy protection for genetic and epigenetic “big data,” and public education and engagement in the area of genetic and ancestry testing. However, the main focus will be on the ethical, legal and social implications of epigenetics research as it affects Indigenous populations. Engaging Indigenous stakeholders in policy development and training geneticists and other health professionals in culturally aware practices, is essential for the benefits of this area of medical research to be shared equitably across populations.
This symposium will bring together bioethicists, clinicians, epidemiologists, health lawyers, geneticists, medical educators and research students. Most importantly, invited speakers include representatives of Indigenous and other minority communities as primary stakeholders.
To attend the Q&A panels, please use the following link
(no registration is required): https://unimelb.zoom.us/j/84021910585?pwd=Vk1VdTFLSDJkVlU1VjkxZTEzaUsyZz09
Presentations will be pre-recorded and available on the symposium website to view on demand, with presenters available for three live Q&A sessions at the following times:
- Session 1: Genetic research and clinical genomics for Indigenous people
Sydney/Melbourne/Canberra Wednesday 5 May 8a; London Tuesday 4 May 11p; New York/Boston Tuesday 4 May 6p
- Session 2: Consent and communication in genetic research
Sydney/Melbourne/Canberra Wednesday 5 May 10a; London Wednesday 5 May 1a; New York/Boston Tuesday, 4 May 8p
- Session 3: ELSI of precision medicine
Sydney/Melbourne/Canberra Wednesday 5 May 9p; London Wednesday 5 May 12p; New York/Boston Wednesday 5 May 7a