Maree Maxfield

List of Supervisors:

Professor Keith McVilly, Professor of Disability & Inclusion, Director of Master of Social Policy in the School of Social & Political Sciences, The University of Melbourne

Associate Professor Helen Jordan, Centre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne

Title of your PhD:

A good life: Identifying the subjective wellbeing needs of adults with a disorder of the corpus callosum

Abstract:

Individuals with a congenital disorder of the corpus callosum (DCC) are born missing all or part of their corpus callosum, the largest white matter structure connecting the hemispheres of the brain. DCCs are rare and extremely heterogeneous with cognitive, physical and psychological impacts ranging from mild to severe. Although there is a growing body of biomedical research, very little is known about the lives of adults with a DCC. This research aims to collaboratively work with adults with DCCs to understand their lived experience and improve their personal wellbeing.