Making it a real choice: Improving the usability of cervical screening self-collection swabs for people with physical and sensory disability

Project Details

While Australia has made significant progress towards the elimination of cervical cancer, this progress is uneven, with priority populations such as people with disability facing additional barriers to screening compared to the general population. 

People with disability experience a range of barriers to cancer screening programs, including cervical screening. Self-collection, where an individual collects their own sample using a lower vaginal swab, has been shown to improve participation in cervical screening for under and never-screened women and other people with a cervix. Through the Supporting Choice for Cervical Screening project, we have explored barriers and enablers to implementation of self-collection for cervical screening.  We interviewed people with disability, and people who provide health and other services to people with disability, about how the choice of self-collection can be made more accessible.

We heard that self-collection has potential to address some of the existing inequities in access to, and experiences of, cervical screening. However, the current design of the self-collection swab poses challenges for some people with physical and sensory disability.

How to get involved

We are running workshops between August and October 2025 for women and other people with a cervix who have physical or sensory disabilities.
Contact the team for information on how you can be involved by email on Real-Choice@unimelb.edu.au.

Researchers

University of Melbourne Project leads, technical experts, and advisors

Collaborators

  • A/Prof Megan Smith and Prof Deborah Bateson – The University of Sydney
  • Kate Flynn and A/Prof Dave Hawkes – The Australian Centre for Prevention of Cervical Cancer (ACPCC) / VCS Pathology
  • Women with disabilities are members of our project team and our advisory group and help run the project.

Funding

Funded through a Melbourne Disability Institute Seed funding grant

Research Group

Evaluation and Implementation Science Unit

Key Contact

For further information about this research, please contact the research group leader.

Department / Centre

Centre for Health Policy

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