P-PROM ROCK Study: Co-designing and piloting a generic Paediatric Patient Reported Outcome Measure (P-PROM) intervention for use in Routine Outpatient Care for Kids (ROCK)

Project Details

Patient reported outcome measures (PROMs) capture how a patient’s health and wellbeing is going from their perspective. Using PROMs in routine clinical care has been purported as a way to systematically bring the patient’s voice into clinical encounters and clinical decision making, leading to more patient centred care. Despite their potential for improved clinical care, simply collecting PROMs routinely in clinical settings is no guarantee they will be useful. Effort is needed to design how PROMs will be presented and actively used to improve clinical encounters, particularly in children. This study aimed to co-design and pilot use of the EQ-5D-Y-5L, a Paediatric PROM (P-PROM), in Routine Outpatient Care for Kids (ROCK), to maximise its impact on clinical care.

This project involves two key stages, a co-design and pilot stage. In the initial co-design stage, researchers are co-designing a way of using the EQ-5D-Y-5L to meaningfully inform routine paediatric clinical outpatient encounters. Service providers, adolescent patients, and caregivers of patients with experience of either providing or receiving paediatric outpatient care at The Royal Children’s Hospital are involved in the co-design. Following the co-design stage, a pilot randomised control trial follows. This pilot randomised control trial assesses the feasibility, acceptability, and usefulness of the co-designed P-PROM ROCK program across several outpatient clinics at The Royal Children’s Hospital, Melbourne, Australia.

Project Duration

2023-2025

Researchers

• Prof Kim Dalziel
• Renee Jones
• Prof Nancy Devlin
• Prof Harriet Hiscock

Funding

EuroQol