STOP MS Study
STOP MS Study (STudying Outcomes of People attending MS programs) is a longitudinal study originally developed from participant evaluations of a residential retreat conducted for people with multiple sclerosis (MS) at The Gawler Foundation in South Eastern Victoria. The aim of this study is to evaluate the quality of life of people attending these residential retreats, and the lifestyle factors influencing that. The study provides an opportunity to assess the longitudinal impact of attending an intensive lifestyle-modification course for MS, on quality of life, disability and level of empowerment. There are over 500 participants now in the STOP MS longitudinal database. The research team continues to analyse data from participants enrolling in the retreats at one, three, five and ten year time points, with detailed lifestyle data available for a subset of 117 of these participants.
Barnard E, Brown CR, Weiland TJ, Jelinek GA, Marck CH. Understanding barriers, enablers, and long-term adherence to a health behavior intervention in people with multiple sclerosis. Disabil Rehabil. 2020 Mar;42(6):822-832.
Claudia H. Marck, A.M. De Livera, C.R. Brown, S.L. Neate, K.L. Taylor, T.J. Weiland, E.J. Hadgkiss, G.A. Jelinek. Health outcomes and adherence to a healthy lifestyle after a multimodal intervention in people with multiple sclerosis: Three year follow-up. PLoSOne. 2018; 13: e0197759.
Hadgkiss EJ, Jelinek GA, Weiland TJ, et al. Health-related quality of life outcomes at 1 and 5 years after a residential retreat promoting lifestyle modification for people with multiple sclerosis. Neurol Sci. 2013;34(2):187-195.
Li MP, Jelinek GA, Weiland TJ, Mackinlay CA, Dye S, Gawler I. Effect of a residential retreat promoting lifestyle modifications on health-related quality of life in people with multiple sclerosis. Qual Prim Care. 2010;18(6):379-389.
Jelinek GA, Hassed CS. Managing multiple sclerosis in primary care: are we forgetting something? Qual Prim Care. 2009;17(1):55-61.
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