Models and quality of genetic health services for Aboriginal and Torres Strait Islander people
Genetic health services are playing an increasingly important role in improving human health. Indigenous people are underrepresented in such services despite having higher prevalence of a number of genetically determined conditions and evidence of willingness to access these services. Our grant will inform the development of effective models of genetic health service provision for Indigenous people. This will improve health equity both now and in the future.
This project will seek to improve the delivery of genetics health services in the Northern Territory (NT), Western Australia (WA) and Queensland (QLD). It will assess the quality, acceptability and effectiveness of the five contrasting models of genetic health service provision, gaining insights into best practice and feasibility in each approach.
Methods used will include patient journey mapping, health service quality measures and genetic literacy measures. The project will develop, implement and evaluate interventions to improve genetic health service provision to Indigenous Australians. This will be achieved through three project phases, each with their own distinct goal and associated knowledge exchange strategy.
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