Ethics of personalised medicine to treat refactory childhood cancer
Project Details
Many rare and relapsed childhood cancers are difficult to cure. A new treatment approach called ‘personalised’ medicine involves whole genome sequencing with the aim of identifying specific drugs to target the tumour. This is an exciting new field but there are many complex issues. In particular there are ethical questions about which patients should be offered genomic sequencing, who should pay for this and for potentially expensive experimental drugs, and how risks should be managed. This study will identify preferences of families and healthcare professionals, develop an ethical framework to help decision-making and develop much-needed informational and educational resources
Researchers
Maria McCarthy - The Royal Children's Hospital
Richard Lourenco
Collaborators
Funding
Victorian Cancer Agency Health Services Project
2017-2019
Funding Amount
- $430
Research Group
Faculty Research Themes
School Research Themes
Disparities, disadvantage and effective health care, Prevention and management of non-communicable diseases (including cancer), and promotion of mental health
Key Contact
For further information about this research, please contact the research group leader.
Department / Centre
MDHS Research library
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