This event  has now concluded. To view a new story about the day plus photos and video, click here.

  • Resources for participants

    • Date

    Saturday October 11 (full day) to Sunday October 12 (half day)

    Title

    Indigenous Datathon: Applying Indigenous Data Governance to Healthcare

    Location

    Level 4, P-Block, Queensland University of Technology, Gardens Point Campus, Brisbane

    Description

    Join the Indigenous Data Network (University of Melbourne), the Australian and New Zealand Intensive Care Society (ANZICS), the Australian Institute of Health and Welfare (AIHW), QUT Centre for Data Science (QUT CDS), the Australian and New Zealand Dialysis and Transplant Registry (ANZDATA) and the Aboriginal and Torres Strait Islander Community Health Service Brisbane (ATSICHS-Brisbane) for an Indigenous Datathon.

    The event will see participants explore real-world questions using data science, guided by the CARE Principles (Collective Benefit, Authority to Control, Responsibility, Ethics) of Indigenous data governance.

    Participants will work in teams to analyse datasets on healthcare while learning how to apply ethical, culturally responsive data practices. Whether you are a student, clinician, researcher, or emerging data scientist, this is a chance to sharpen your skills, connect with others, and contribute to meaningful, values-driven solutions.

    We welcome participants with a wide range of backgrounds and skills who are interested in engaging with health data, though we strongly encourage the participation of Aboriginal and Torres Strait Islander people.

    Numbers are limited to ensure each participant is well supported by mentors, subject domain experts and datathon volunteers.

    Expressions of Interest

    EOIs for this event are now closed.

    For participants

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  • Prompt Questions

    Click here to access the prompt questions for Datathon 2025 participants.

    • Required Readings


    Carroll, S.R., Garba, I., Figueroa-Rodríguez, O.L., Holbrook, J., Lovett, R., Materechera, S., ... & Hudson, M. (2020). The CARE Principles for Indigenous Data Governance. Data Science Journal, 19. https://doi.org/10.5334/dsj-2020-043  

    Rose, J., Langton, M., Smith, K., & Clinch, D. (2023). Indigenous data governance in Australia: towards a national framework. The International Indigenous Policy Journal, 14(1), 1–30. https://doi.org/10.18584/iipj.2023.14.1.10987

    Stanley, F., Langton, M., Ward, J., McAullay, D., & Eades, S. (2021). Australian First Nations response to the pandemic: A dramatic reversal of the ‘gap’. Journal of Paediatrics and Child Health, 57(12), 1853–1856. https://doi.org/10.1111/jpc.15701  

    Trudgett, S., Griffiths, K., Farnbach, S., & Shakeshaft, A. (2022). A framework for operationalising Aboriginal and Torres Strait Islander data sovereignty in Australia: Results of a systematic literature review of published studies. eClinicalMedicine, 45, 101302. https://doi.org/10.1016/j.eclinm.2022.101302  

    Griffiths, K. E., Blain, J., Vajdic, C. M., & Jorm, L. (2021). Indigenous and tribal peoples data governance in health research: A systematic review. International Journal of Environmental Research and Public Health, 18(19), 10318. https://doi.org/10.3390/ijerph181910318

    Spierings, S., Oguoma, V. M., Shakeshaft, A., Walker, J., Toombs, M., Ward, J. S. (2024). Knowledge about COVID-19 vaccines among Aboriginal and Torres Strait Islander people, and attitudes to and behaviours regarding COVID-19 and influenza vaccination: a survey. Medical Journal of Australia, 222(1), 30–37. https://doi.org/10.5694/mja2.52551

    Recommended Readings


    Garvey, G., Percival, N., Izquierdo, L., Moodie, D., & Moore, S. (2016). Big data in an indigenous health context: Opportunities and obstacles. Cancer Forum, 40(2), 110–114. https://search.informit.org/doi/10.3316/informit.228289608081063  

    Engstrom, T., Lobo, E. H., Watego, K., Nelson, C., Wang, J., Wong, H., ... & Sullivan, C. (2024). Indigenous data governance approaches applied in research using routinely collected health data: a scoping review. npj Digital Medicine, 7(1), 68. https://doi.org/10.1038/s41746-024-01070-3

    Recommended Videos


    Musgrave, S. (2025), FAIR and CARE Principles 101. (HASS & Indigenous Summer School 2025) Australian Research Data Commons - ARDC. University of Queensland, Brisbane (2025, March 27). [Video]. YouTube. https://www.youtube.com/watch?v=UGGdLAeNWX8  

    Smith, K. (2025). Case Study: Yirrkala School Literature Production Centre Digitisation Project. Australian Research Data Commons Summer School 2025. University of Queensland, Brisbane (2025, March 27).  [Video]. YouTube. https://www.youtube.com/watch?v=vNzDO0m9DTo&t=2039s  

    Aleckson, J., Deng, C., Powell, G. (2022). Session 10 - The Data That Communities Need, Indigenous Data Network Indigenous Data Governance & Sovereignty Roundtable. University of Melbourne, Parkville (2022, 9-10 June). [Video]. Vimeo. https://vimeo.com/showcase/9885109/video/763232712

    Langton, M. [Moderator], Anderson, I., Boffa, J., Halaca, C., McCalman, J., Drew, N., (2017). 20 - IDSS17 Panel 04 - Data for Health, Indigenous Data Sovereignty Symposium. University of Melbourne, Parkville (November 2017). [Video]. Vimeo. https://vimeo.com/showcase/7755023/video/245134507

    Code of conduct

    The code of conduct can be downloaded here.

    Program

    The event program can be downloaded here.

    Co-Convenors

    Sponsor

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