Dr Ilias Goranitis at the World Economic Forum offices in San Francisco, September 2019

Dr Ilias Goranitis participated in the Roundtable on the Economics of Rare Disease Data Federations at the World Economic Forum’s Centre for the Fourth Industrial Revolution in San Francisco, CA.

The World Economic Forum is publishing a white paper exploring the return-on-investment of enabling cross-border access to genomic data for the purposes of better-diagnosing and better-treating rare diseases.  This white paper is an integral part of the Forum’s pilot project Breaking Barriers to Health Data, which aims to support producing a proof of concept for allowing cross-border access to genomic data.

Dr Ilias Goranitis is a senior health economist working within HEU and Australian Genomics.