Bailey, C., Dalziel, K., Constable, L., Devlin, N., Hiscock, H., Skouteris, H., Peasgood, T. (2024). The performance of the EQ-HWB-S as a measure of quality of life of caregivers in families that have experienced adverse events. The European Journal of Health Economics.
Huang, L., Devlin, N., Chen, G., Dalziel, K. (2024) A happiness approach to valuing health states for children. Social Science and Medicine.
Bailey, C., Dalziel, K., Jones, R. et al. The Validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) Instrument in Parents of Children With and Without Health Conditions. PharmacoEconomics (2024). https://doi.org/10.1007/s40273-024-01351-5
Bailey, C., Deane, D., O’Brien, A., Dalziel, K. (2024) An economic evaluation of point-of-care ultrasound for children presenting to the emergency department with suspected septic arthritis of the hip. Australian Health Review 48, 37-44.
O’Loughlin, R., Jones, R., Chen, G., Mulhern, B., Hiscock, H., Delvin, N., Dalziel, K. (2024). Comparing the Psychometric Performance of Generic Paediatric Health-Related Quality of Life Instruments in Children and Adolescents with ADHD, Anxiety and/or Depression. PharmacoEconomics. https://doi.org/10.1007/s40273-024-01354-2
Xiong, X., Carvalho, N., Huang, L., Chen, G., Jones, R., Delvin, N., Mulhern, B., Dalziel, K. (2024). Psychometric Properties of Child Health Utility 9D (CHU9D) Proxy Version Administered to Parents and Caregivers of Children Aged 2–4 Years Compared with Pediatric Quality of Life Inventory™ (PedsQL). PharmacoEconomics. https://doi.org/10.1007/s40273-024-01355-1
Bailey, C., Howell, M., Raghunandan, R., Dalziel, K., Howard, K., Mulhern, B., Petrou, S., Rowen, D., Salisbury, A., Viney, R., Lancsar, E., & Devlin, N. (2024). The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life. PharmacoEconomics. https://doi.org/10.1007/s40273-023-01333-z
van Heusden, A., Rivero-Arias, O., Herdman, M., Hiscock, H., Devlin, N., Dalziel, K., & in collaboration with the Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team. (2024). Psychometric Performance Comparison of the Adapted versus Original Versions of the EQ-5D-Y-3L and -Y-5L in Proxy Respondents for 2- to 4-Year-Olds. PharmacoEconomics. https://doi.org/10.1007/s40273-024-01350-6
Rogge A, Snyder C, Liegl G, Rose M, Nolte S, on behalf of the EORTC Quality of Life Group (2024). EORTC QLQ-C30 general population normative data for the United States. Eur J Cancer. https://doi.org/10.1016/j.ejca.2024.114030
Pilz, M.J., Loth, F.L.C., Nolte, S., Thurner, A.M.M, Gamper, E-M, Anota, A., Liegl, G., Giesinger, J.M., on behalf of the EORTC Quality of Life Group (accepted). General population normative values for the EORTC QLQ-C30 by age, sex, and health condition for the French general population. J Patient Rep Outcomes
Young, T., Velikova, G., Liegl, G., Rose, M., Nolte, S., EORTC Quality of Life Group (in press). EORTC QLQ-C30 normative data for the United Kingdom: Results of a cross-sectional survey of the general population. Eur J Cancer. https://doi.org/10.1016/j.ejca.2024.113927
Befus, E.G., Mølland, E., Helseth, S., Hagen, M., Stea, T.H., Nolte, S., Haraldstad, K. (2024). The use of youth healthcare services and its association with health-related quality of life, physical and mental health and over-the-counter analgesics use in 13-19-year-old adolescents: a cross-sectional study. BMC Public Health, 24(1), 104. https://doi.org/10.1186/s12889-023-17544-0
2023
Dalziel, K., van Heusden, A., Sarvananthar, J., Jones, R., McGregor, K., Huang, L., Rivero-Arias, O., Herdman, M., Hiscock, H., & Devlin, N. (2023). A Qualitative Investigation to Develop an Adapted Version of the EQ-5D-Y-3L for Use in Children Aged 2-4 Years. Value in Health, 26(10), 1525–1534. https://doi.org/10.1016/j.jval.2023.06.004
J. Verstraete, S. Kreimeier, K. Dalziel, B.M. Morrow, J. Jelsma, B. Roudijk, N. Devlin, E. Bidgood, M. Herdman. (2023) PCR245 Stakeholder Engagement and Expert Consultation on the EuroQol Toddler and Infant Populations (EQ-TIPS) Measure of Health-Related Quality of Life (HRQoL). ISPOR Vol 26, Issue 12. https://doi.org/10.1016/j.jval.2023.09.2682
Huang, L., Dalziel, K., Lloyd, M., Paxton Loke, Adriana C Lozinsky, Mimi Tang. (2023). Cost-effectiveness analysis of probiotic peanut oral immunotherapy (PPOIT) versus placebo in Australian children with peanut allergy alongside a randomised trial. BMJ Open;13:e075521.
Tew, M., Catchpool, M., Furler, J., De La Rue, K., Clarke, P., Manski-Nankervis, J., Dalziel, K. (2023). Site-specific factors associated with clinical trial recruitment efficiency in general practice settings: a comparative descriptive analysis. Trials 24, 164.
Jones, R., O’Loughlin, R., Xiong, X., Bahrampour, M., Devlin, N., Hiscock, H., Chen, G., Mulhern, B., Dalziel, K. Quality of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team. Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study. PharmacoEconomics (2023). https://doi.org/10.1007/s40273-023-01330-2
Xiong, X., Carvalho, N., Huang, L., Chen, G., Jones, R., Devlin, N., Mulhern, B., Dalziel, K., Psychometric properties of Child Health Utility 9D (CHU9D) proxy version administered to parents and caregivers of children aged 2-4 years compared with Pediatric Quality of Life Inventory™ (PedsQL). [accepted]. PharmacoEconomics. 2023
Jones, R., O’Loughlin, R., Xiong, X., Bahrampour, M., McGregor, K., Yip, S., Devlin, N., Hiscock, H., Mulhern, B., Dalziel, K.. Collecting paediatric health-related quality of life data: Assessing the feasibility and acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study. Children 2023;10:1604. doi: https://doi.org/10.3390/children10101604
Bailey, C., Howell, M., Raghunandan, R., Dalziel, K., Howard, K., Mulhern, B., Stavros, P., Rowen, D., Salisbury, A., Viney, R., Lancsar, E. & Devlin, N. (2023). The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health related quality of life. PharmacoEconomics.
Devlin, N. J., Pan, T., Sculpher, M., Jit, M., Stolk, E., Rowen, D.,Norman, R. (2023). Using Age-Specific Values for Pediatric HRQoL in Cost-Effectiveness Analysis: Is There a Problem to Be Solved? If So, How? Pharmacoeconomics, doi:10.1007/s40273-023-01300-8
Mulhern, B. J., Pan, T., Norman, R., Tran-Duy, A., Hanmer, J., Viney, R. & Devlin, N. J. (2023). Understanding the measurement relationship between EQ-5D-5L, PROMIS-29 and PROPr. QUALITY OF LIFE RESEARCH, pp. 14-. doi:10.1007/s11136-023-03462-6
Chen, C., Bailey, C., Baikie, G., Dalziel, K., & Hua, X. (2023). Parents of children with disability: mental health outcomes and utilisation of mental health services. Disability and Health Journal, https://doi.org/10.1016/j.dhjo.2023.101506
David-Wilathgamuwa, S., Hu, N., Meyers, T., O’Loughlin, R., Lingam, R. (2023). Socio-emotional and behavioural difficulties in children with chronic physical conditions: Analysis of the Longitudinal Study of Australian Children. Archives of Disease in Childhood 26 April 2023;108:569-575. doi: 10.1136/archdischild-2022-325069
O’Loughlin, R., Hiscock, H., Devlin, N., Dalziel, K. (2023). Distinct developmental trajectories of health-related quality of life for boys and girls throughout childhood and adolescence; a national level longitudinal study. Health and Quality of Life Outcomes 01 Aug 2023;21(1):82. doi: 10.1186/s12955-023-02171-5
Xiong, X., Dalziel, K., Huang, L., Mulhern,B., Carvalho, N. (2023). How do common conditions impact health-related quality of life for children? Providing guidance for validating pediatric preference-based measures. Health Qual Life Outcomes. 2023 Jan 25;21(1):8. doi: 10.1186/s12955-023-02091-4.
Neppelenbroek, N., de Witt, Ardine., Dalziel, K., Devlin, N., Carvalho, N. (2023). Use of utility and disability weights in economics evaluation of pediatric vaccines: a systematic review. Value in Health 2023 Mar 24:S1098-3015(23)00103-1. doi: 10.1016/j.jval.2023.03.005.
Tew, M., Catchpool, M., Furler, J., De La Rue, K., Clarke, P., Manski-Nankervis, J.A., Dalziel, K. (2023). Site-specific factors associated with clinical trial recruitment efficiency in general practice settings: a comparative descriptive analysis. Trials. 2023 Dec;24(1):1-8.
Hua, X., Rivero-Arias, O., Quigley, M.A., Kurinczuk, J.J., Carson, C. (2023). Long-term healthcare utilization and costs of babies born after assisted reproductive technologies (ART): a record linkage study with 10-years’ follow-up in England. Human Reproduction. 2023 Dec 1;38(12):2507-15.
Hua, X., Petrou, S., Coathup, V., Carson, C., Kurinczuk, J.J., Quigley, M.A., Boyle, E., Johnson, S., Macfarlane, A., Rivero-Arias, O. (2023). Gestational age and hospital admission costs from birth to childhood: a population-based record linkage study in England. Archives of Disease in Childhood-Fetal and Neonatal Edition. 2023 Sep 1;108(5):485-91.
Chen, W., Sun, L., Pan, T., Bai, G. (2023). Health-related quality of life of children with Williams Syndrome and caregivers in China. Front. Public Health Sec. Children and Health Volume 11 - 2023 | doi: 10.3389/fpubh.2023.1177317
de Ligt, K.M., Aaronson, N.K., Liegl, G., Nolte, S. (2023). Updated normative data for the EORTC QLQ-C30 in the general Dutch population by age and sex: a cross-sectional panel research study. Qual Life Res. https://doi.org/10.1007/s11136-023-03404-2
Johansson, H., Lagergren, P., Nolte, S., Brandberg, Y. (2023). Comparison between Swedish EORTC QLQ-C30 general population norm data published in 2000 and 2019. Acta Oncol, 1-7. https://doi.org/10.1080/0284186x.2023.2271165
Pilz, M.J., Nolte, S., Liegl, G., King, M., Norman, R., McTaggart-Cowan, H., Bottomley, A., Rose, M., Kemmler, G., Holzner, B., Gamper,E.M., EORTC Quality of Life Group (2023). The European Organisation for Research and Treatment of Cancer Quality of Life Utility-Core 10 Dimensions: Development and Investigation of General Population Utility Norms for Canada, France, Germany, Italy, Poland, and the United Kingdom. Value Health. , 26(5):760–7, https://doi.org/10.1016/j.jval.2022.12.009
Potashman, M., Pang, M., Tahir,M., Shahraz, S., Dichter, S., Perneczky, R., Nolte, S. (2023). Psychometric properties of the Alzheimer's Disease Cooperative Study - Activities of Daily Living for Mild Cognitive Impairment (ADCS-MCI-ADL) scale: a post hoc analysis of the ADCS ADC-008 trial. BMC Geriatr, 23(1), 124. https://doi.org/10.1186/s12877-022-03527-0.
Wagner C, Witt JH, Nolte S, van der Poel HG, Aaronson NK, Kolvatzis M, Tian Z, Mendrek M, Liakos N, Gratzke C, Leyh-Bannurah S-R (2023). Differences in Quality of Life between German and Dutch Patients with Prostate Cancer Treated with Robot-assisted Radical Prostatectomy: Implications for International Multicenter Randomized Controlled Trials. Eur Urol Focus. https://doi.org/10.1016/j.euf.2023.02.007
2022 and earlier
Jones, R., Hiscock, H., Shanthikumar, S., Lei, S., Sanci,L., Chen, K. (2022). Exploring gaps and opportunities in primary care following an asthma hospital admission: a multisite mixed-methods study of three data sources. Archives of Disease in Childhood. Published Online First: 04 January 2023. doi: 10.1136/archdischild-2022-324114
Chen, K.Y., Jones, R., Lei, S., Shanthikumar, S., Sanci, L., Carlin, J., Hiscock, H. (2022). Primary health care utilization and hospital readmission in children with asthma: A multi-site linked data cohort study. J Asthma 2023:1-12. Published Online First: 2023/01/04. doi: 10.1080/02770903.2022.2164200
Hua X, Dalziel K, Brettig T, Dharmage SC, Lowe A, Perrett KP, Peters RL, Ponsonby AL, Tang ML, Koplin J. Out‐of‐hospital health care costs of childhood food allergy in Australia: A population‐based longitudinal study. Pediatric Allergy and Immunology. 2022 Nov;33(11):e13883.
Ride J, Cameron L, Jones R, Dalziel K, Wurzel D, Kao K-T, et al. (2022). Preferences of parents for mental health services to suit children with chronic medical conditions. Australian Health Review. 2022.
Gillespie, A.N., Dalziel, K., Webb,E., Wong,J., Jones, C.A., Sung, V.; on behalf of the HearS-cCMV Project † . (2022). Targeted screening for congenital cytomegalovirus: A micro-costing analysis. Journal of Paedatrics and Child Health. 21 September 2022.
Khano,S., Sanci, L., Woolfenden, S., Zurynski, Y., Dalziel, K., Liaw, S., Boyle,D., Freed, G.L., Moore,C., Hodgins, M., Le, J., Morris, T.M., Germano, S., Wheeler, K., Lingam, R., Hiscock, H. (2022). Strengthening Care for Children (SC4C): protocol for a stepped wedge cluster randomised controlled trial of an integrated general practitionerpaediatrician model of primary care. BMJ Open, 2022; 12 e063449.
Brettig, T., Dalziel, K., Koplin, J.J., Dang, T., Lange, L., McWilliam, V., Sato, S., Savvatianos, S., Perrett, K.P. Ana o 3 sIgE and diagnostic algorithms reduce cost of cashew allergy diagnosis in children compared with skin prick test: A cost comparison analysis. Pediatric Allergy and Immunology. 33(8), August 2022.
Bailey, C., Howell, M., Raghunandan, R., Salisbury, A., Chen G., Coast, J., Craig, J. Devlin, N., Huynh, E., Lancsar, E., Mulhern, B., Norman, R., Petrou, S., Ratcliffe, J., Street, D., Howard, K., and Viney, R (2022). Preference Elicitation Techniques Used in Valuing Children’s Health‑Related Quality‑of‑Life: A Systematic Review PharmacoEconomics https://doi.org/10.1007/s40273-022-01149-3
Devlin, N., Pan, T., Kreimeier, S. et al. (2022). Valuing EQ-5D-Y: the current state of play. Health Qual Life Outcomes 20, 105. https://doi.org/10.1186/s12955-022-01998-8
O’Loughlin, R., Hiscock, H., Pan, T., Devlin, N., Dalziel. K. (2022). The relationship between physical and mental health multimorbidity and children’s health-related quality of life. Qual Life Res 31, 2119–2131 (2022). https://doi.org/10.1007/s11136-022-03095-1
Shi, Y.C, Hiscock, H, Oakley, E,. Freed, G., O’Loughlin, R. (2022). Non-indicated brain computed tomography scans for children: adaptation of an American measurement tool and contrast of current practice in an Australian Hospital. Pediatric Emergency Care 2022 Feb 1;38(2):e550-5. doi: 10.1097/PEC.0000000000002515
Amin, S., Joo, S., Nolte, S., Yoo, H.K., Patel, N., Byrnes, H.F., Costa-Cabral, S., Johnson, C.D,. (2022). Health-related quality of life scores of metastatic pancreatic cancer patients responsive to first line chemotherapy compared to newly derived EORTC QLQ-C30 reference values. BMC Cancer, 22(1), 563. https://doi.org/10.1186/s12885-022-09661-7
Elsworth, G., Nolte, S., Cheng, C., Hawkins, M., Osborne, R. (2022). Modelling variance in the multi-dimensional Health Literacy Questionnaire: Does a General Health Literacy factor account for observed interscale correlations? SAGE Open Med, 10, https://doi.org/10.1177/2050312122112471
Liegl, G., Obbarius, A., Rose, M., Fischer, K.I., Stengel, A., Knebel, F., Buttgereit, F., Nolte, S. (2022). Frequently used patient-reported outcome (PRO) measures of general physical function were highly correlated with the physical performance test, a multi-task performance outcome (PerfO) measure. Value Health. https://doi.org/10.1016/j.jval.2022.05.008
Osborne, R.H., Cheng, C.C., Nolte, S., Elmer, S., Besançon, S., Budhathoki, S.S., Debussche, X., Dias, S., Kolarčik, P., Loureiro, M.I., Maindal, H., do Ó,D.M., Smith, J.A., Wahl, A., Elsworth, G.R., Hawkins, M. (2022). Health literacy measurement: embracing diversity in a strengths-based approach to promote health and equity, and avoid epistemic injustice. BMJ Global Health. http://dx.doi.org/10.1136/bmjgh-2022-009623
Pilz, M.J., Gamper, E-M., Efficace, F., Arraras, J.I., Nolte, S., Liegl, G., Rose, M., Giesinger, J.M.; EORTC Quality of Life Group (2022). EORTC QLQ-C30 general population normative data for Italy by sex, age and health condition: An analysis of 1,036 individuals. BMC Public Health, 22(1), 1040. https://doi.org/10.1186/s12889-022-13211-y