I am a social worker and Graduate Researcher with the Indigenous Studies Unit at the Melbourne School of Population and Global Health (MSPGH). My research focusses on the lived experience of a yet incurable retrovirus and sexually transmissible infection (STI), the human T leukaemia virus 1 (HTLV-1). HTLV-1 causes fatal diseases including an aggressive form of leukaemia and is associated with a range of debilitating health conditions that shorten the lifespan. The highest prevalence of HTLV-1 has been recorded in the Aboriginal population of Central Australia (37%).

As I am based in a remote location - Mpartnwe, Alice Springs - from where travel can be time-consuming and expensive, I was thrilled to receive this scholarship, which enabled me to attend and present at the HTLV-1 European Research Network (HERN) Conference at the Institute of Clinical and Molecular Virology in Erlangen, Germany. This was a poignant opportunity for me to meet numerous researchers who are part of the HTLV-1 consortium face-to-face for the first time. Being a neglected virus, the HTLV-1 research community is both small and uniquely collegiate. This was reflected in the proceedings of the conference itself, where every researcher in attendance presented and whole-of-group discussion was a key feature.

The travel hosts, staff at the Thoma-Kress Lab in Erlangen, share my interest in mother-to-child transmission (MTCT) of HTLV-1, and this presented an ideal opportunity for research promotion, information sharing and a foundation for potential future collaborations. In the Public Health session, I reported on the co-design, execution and results of a pilot ‘HTLV-1 wellbeing camp’ carried out with one remote Aboriginal community that has a high prevalence of HTLV-1. This initiative was funded by the Australian Association of Social Workers and the findings, which will be published in 2026, highlight the importance of a community-wide approach to HTLV-1 education and prevention as a means to supports mothers, who may face difficult decisions regarding diagnosis and breastfeeding.

The conference showcased the latest scientific advances in HTLV-1 in Europe, the Americas and Oceania with an emphasis on diagnostics and the treatment landscapes, which are likely to have implications for women and children in Central Australia over the coming years. I was one of four Australian researchers to attend, and our combined presentations spotlighted the considerable yet hidden burden of HTLV-1 in remote Australia, while indicating possibilities for future treatment and a public health response.

The challenge remains to consider, plan for, design and implement studies, primary health initiatives and public health programmes that will allow for nascent developments in HTLV-1 science to be translated into the remote Australian context in a culturally safe way. The planning of a study that will further the prevention of MTCT of HTLV-1 – a yet unstudied phenomenon in Central Australia – is now underway and includes partnership with several international stakeholders who are key members of HERN. This initiative will support the implementation of the HTLV-1 Clinical Guidelines that were released by the National Aboriginal Community Controlled Health Organisation in March 2025.

In this early stage of my doctoral studies, it is important to me as it is to other HTLV-1 researchers in Australia to maintain international research relationships, drawing attention to the HTLV-1 public health needs that are apparent in Central Australia while extending the implications of our research for the benefit of other endemic regions. The HERN Conference was the optimal environment in which to animate these intentions. It was a joy to attend and participate,  honouring both the priorities of the MSPGH regarding healthy futures for children and extending the legacy of Elizabeth’s important work, albeit in a slightly new direction, in global child health affairs.

Reflections from the 25th International Psycho-Oncology Society (IPOS) World Congress of Psycho-oncology 2024

Since 2016 when this scholarship established, in an honorary research capacity, I have begun my research journey on Exploring the effectiveness of psychosocial interventions designed to address psychosocial distress in young facing a cancer diagnosis within the family. The subject which is very close to my heart and it was a great privilege to receive this travel scholarship in the legacy of Liz’s name.

The scholarship provided me a great opportunity to share my research finding with other researchers and learn from their experience within the 25th International Psycho-Oncology Society (IPOS) World Congress of Psycho-oncology in Maastricht, The Netherlands.

While my initial aim was to build a comprehensive network with international researchers it went beyond my expectation and was extremely worthwhile. I met several researchers and clinicians, in such a beautiful city of Maastricht, who shared the innovative programs in assisting and empowering families and young affected by cancer.

It was truly an occasion for knowledge exchange and collaboration by connecting with other researchers who exchange dialogue about improving cancer care on an international and local levels and sharing strategies to address psychosocial issues to all aspects of cancer care with an emphasis on “what we can learn from each other”.
It was great to understand that there is a global consideration in the importance of peer support programs and a highlight of learning from individuals with living and/or lived experience whom can make a difference in cancer care.

Learning of current innovative approaches to cancer assistance and enhancing my skills through the IPOS environment has been very much contributed to my motivation and competency in keeping my passion in this area of research. Having a lived experience, being a clinician this scholarship has been provided great contribution to my current work on empowering young and adolescents affected by cancer and highly inspired me in keeping my research activity going.
The knowledge about resources and programs that empower families and teenagers who are or have been impacted by cancer in the family goes along with the work of the Disaster, Climate and Adversity Unit and links up with its program on supportive, positive mental health and resilience.  

Returning from the fellowship, I am going to share my knowledge and experience with my colleagues and students at the University of Melbourne, and with health professionals in the Alfred Health, and Oncology Interest Group where I have been doing some activities.

I would like to express special thanks to Professor Lisa Gibbs for her wonderful unconditional support during my research journey and the Scholarship committee for awarding me this delightful travel opportunity, and to Mrs Alana Pirrone for her kind assistance in managing my travel. Also, I want to thank my managers at my current workplace “Psychological Trauma Service, The Alfred Health” for supporting my leave as professional development leave.

The scholarship allowed me to learn and share enriching experiences around the project "Participatory and intergenerational process for the design, construction and evaluation of the First Local Policy for Children and Adolescents of the commune of Melipilla, Metropolitan Region of Chile." This project has the aim to promote children and young people's rights, including the right to participate, by co-designing with them the First Local Policy for Children and Young People in Melipilla, Chile. During the trip to the University of Melbourne I had the opportunity to meet with the members of the Child and Community Wellbeing Unit who were part of the Think Big study, and other university research teams that are focused on child- and adolescent-led local policy-making processes. Below is a summary of my main activities, learnings and reflections:

• [24/04/2023] Melipilla Municipality Project Meeting: In this instance, details of the project of the Melipilla Municipality and some key elements for the presentation during the NATWIT Workshop were discussed.
• [26/04/2023] Participatory Research with Children - Meeting 1: getting to know each other and our work: During this meeting, we talked among the researchers Lisa Gibbs, Katitza Marinkovic Chavez, Rathi Ramji and Margareta Rämgård. We update what each one is working on in their respective countries. It is interesting to learn about the participatory methodologies used and the work in Sweden, shed light on sustainable community work, where self-organization tools around public health are installed (i.e., community health workers) and how autonomous activities are being developed for the promotion of the health and wellbeing.
• [26/04/2023] Participatory Research Reading Group with PhD Migration Program: Meeting of intense exchange of ideas and reflections between researchers. One of the lessons that emerged from this activity was the importance of tailoring research methodologies to communities and their contexts, in order to promote free expression during the research process. Another interesting idea that the group discussed in relation to doing research with communities was that “sometimes ideas cannot be expressed in words […]”.
• [26/04/2023] Meeting with Harry Shier about Participatory Research with Children in rural areas: I asked Harry about his experience doing action research with children and youth from rural communities in Nicaragua, including difficulties, facilitators, and challenges.
• [27/04/2023] Presentation at Workshop “Nothing About Them, Without Them: doing research with children and youth” (NATWIT): this activity helped me identify the following actions for my project: 1) generating a learning community among adults for the creation of a local policy with and for children (e.g., training facilitators for more effective participation processes); 2) carrying out a participatory community assessment (diagnosis) of the demands and needs of children and young people, 3) developing ethical and methodological guidelines for the participatory processes; 4) holding regular meetings with key actors who are leading effective participation experiences with children and youth in Chile and the world; 5) involving children, young people and their families in the development of a parliament as key decision-making space in the community. The discussions that emerged from the workshop presentations were extremely exciting and enriched my understanding of different approaches to participatory and child rights-based research. Additionally, I learned about national and international examples of good practice in participatory research. Finally, workshop attendees expressed their wish to stay connected by forming a virtual community of practice; space in which I will continue to participate and continue learning and sharing advances on my project.

I feel that I have experienced a process of great moments and learning with people with an open heart to value the voices and influence of children and young people from different cultures and contexts, visualizing their creative power of knowledge within each community and academic spaces. Researchers of participatory research are -apparently- activists who facilitate processes to promote the health, well-being -and other rights- of children and young people around the world. I will always admire the researchers I met and all the important work they do.

• [05/05/2023] Presentation in the Municipality of Melipilla

After the trip, the travel experience to Australia was systematized and presented to the Expanded Network of the Integral Protection Subsystem “Chile Grows with You”. In this presentation it was possible to discuss the challenges surrounding the internal training of municipal professionals, rethink the inclusion criteria of the sample, and other topics. The opportunity provided by the Child and Community Wellbeing Unit in Melbourne School of Population and Global Health at the University of Melbourne was greatly appreciated.

Supporting Global Child Mental Health in the Climate Emergency

Kati is a Research Fellow at the Child & Community Wellbeing Unit. Her work focuses on promoting children and young people’s empowerment and wellbeing in contexts of climate change, disasters, and domestic violence. Kati applied to the scholarship to attend the XI International Collaboration for Participatory Health Research (ICPHR) Annual Working Meeting in 2019 to organize an international working group interested in applying a rights-based approach to doing research with children and young people in the field of climate change.

Due to the COVID-19 pandemic, the ICPHR Annual Working Meeting was carried out online during 2020 and 2022. During this time, Kati contributed to maintain and strengthen the ICPHR and the Kids in Action Network by joining the network’s Steering and Coordination Committees and facilitating workshops about doing online research with children and youth. This work allowed her to use her scholarship to attend the XII AWM in Huelva, Spain and achieve the following:

• Establishing multinational collaborations and networks with English, Spanish and Portuguese-speaking researchers by facilitating workshops during the Annual Working Meeting and acting as MC at the ICPHR Pre-Conference.
• Establishing international collaborations for shared learning on children and young people’s participation in climate change action and climate change adaptation, including the University of Birmingham.
• Disseminating Your Climate Superpowers, a resource co-designed with children and young people in Victoria.
• Joining the Ethics and Literature Review working groups to support an upcoming project on the experiences of young people who engage in climate litigation.
• Linking with international researchers to include the SEED resources for building community partnerships in the upcoming Child and Community Wellbeing Unit digital resource on child rights-based research (funded by Melbourne School of Population and Global Health Pitch Scheme).

Reflections from the World Congress of Sociology of Sport, Dunedin NZ

It was such a privilege to receive a travel scholarship in Liz’s name, and now reflecting on what was shared and gained by this international scholar travel opportunity allows me to appreciate the opportunity further.

My aim for the scholarship was to firstly further my academic career by enabling the fostering of networks with academics aligned closely to the field in which I will conduct my PhD research. Secondly the congress was to be an opportunity to raise the profile of the current work undertaken by The Jack Brockhoff Child Health and Wellbeing Program, through the presentation of key findings from the Count Me In project, a research action project understanding the role of sports participation at local sports clubs for facilitating social cohesion and improving health, wellbeing and resilience in children and youth from refugee and migrant backgrounds.

I can happily say attending the World Congress of Sociology of Sport in April 2019, an annual conference organized by the International Sociology of Sport Association (ISSA), was extremely worthwhile. It was held in Dunedin, New Zealand, a quaint and beautiful city. Attendance at this conference was an unfamiliar crossover from my field of public health into sociology, and initially I did feel like a fish out of water. By the end of the conference I came away knowing that using sociological skills learnt at the congress to understand an issue and my public health skills to design interventions to trial solutions is where my academic passion lies.  



For the first time a pre-congress PhD workshop was offered. I was fortunate enough to be able to attend this two-day workshop where general skills on how to thrive during a PhD were discussed. This opportunity was fantastic as I was able to network with like-minded PhD students, all interested in understanding how sport can play a role in our lives. This peer networking not only facilitated links with up and coming scholars who have a similar interest, but I formed rich friendships with people around the world. The organizers of this workshop from the University of Otago were extremely generous, arranging a bus tour of the city and arranged group dinners each night – which is always much appreciated!

My presentation on ‘Count Me In’ generated great interest and enabled me to connect with prominent Australian researchers who have a particular interest in understanding how sport can be a ‘hook’ for programs that aim to facilitate integration for refugee and newly arrived migrants.  

Thank you to Paul, Charlie and Lara and the scholarship committee of Liz’s friends and colleagues for this wonderful opportunity to travel internationally, in which I was able to connect with other scholars that has positively influenced my PhD research and the Count Me In project.

The Elizabeth Waters scholarship has been such a wonderful opportunity! My aim for the scholarship was to build and strengthen connections with researchers and practitioners in the field of children’s (post-trauma) mental health, with a focus on Africa and South-East Asia through interactive conferences, and Australia through research meetings. Within the scholarship year, this has led to multiple opportunities. One highlight was the opportunity to participate in and present at the ASEAN Emerging Researchers Conference, held in Malaysia in December 2018 (see picture). I met several researchers there who do mental health and mental health systems research in South-East Asia and learned about local approaches to research collaboration.



A second highlight was the 5th edition of the Africa Science Leadership Program, where I learned about large, community-oriented mental health projects in Uganda and Zimbabwe, among others. The multi-day program also coincided with several other workshops at the Future Africa campus, including on transdisciplinary research and the process of translating research findings into policy outcomes. The programs brought over 100 researchers from across the African continent as well as from other continents together, and it was very inspiring to see examples of collaborations across a diversity of ‘boundaries’.



Third was the 10-year anniversary of the Global Young Academy (see picture), which brought global researchers together in Germany. In this context, the most impressive conversations I had related to initiatives to improve support for refugees and migrants. All these international visits, from the ASEAN Emerging Researchers Conference to the Global Young Academy meeting were incredibly rich in challenging assumptions and looking for creative ways to work together for a common good.



Finally, closer to home, a highlight of the Scholarship was a visit to Brisbane where I had the opportunity to talk about children’s mental health after fatal family violence for an audience of over 100 attendants including clinical and research staff from Queensland Health and Queensland Children’s Hospital.

The various elements of the Scholarship together have given me substantial food for thought. One of the ideas that I would like to progress to scale up our visiting scholarship opportunities and/or organise an international research workshop to continue the conversations that have started. A second, more concrete outcome, is that I’m working on a new paper regarding child traumatic stress interventions with colleagues involved in the Brisbane visit. And third, both the Global Young Academy and Queensland visits involved participation in (video) recordings; once available, these will help with communicating my work going forward.

A big thank you to the Scholarship committee for awarding me this wonderful opportunity, and to everyone involved in the organisation of the visits involved in the Scholarship, including (but not limited to!) the Global Young Academy team, the Future Africa team, the ASEAN Young Scientists Network, Dr Alex De Young, Dr Orakanoke Phanraksa, Prof Abhi Veerakumarasivam and Prof Bernard Slippers.

Reflections from the Global Evidence Summit, Cape Town.   

It feels both incongruent and highly appropriate to hold a global conference to discuss methods, quality and utility of evidence for decision making for health and social outcomes in Cape Town, South Africa. The taxi driver delivering us from the airport was very concerned about the dismal water situation at the end of a dry winter, with only 25% reservoir capacity reached. He saw the problem primarily made more dire by a government lacking good policy to address the situation as well as an underlying unease that there was 'something else going on here', suggesting industry influence which benefitted from this desperate situation. At the Global Evidence Summit, we were greeted by warnings of non-violent muggings around the conference venue and advised not to walk alone on the streets, and certainly not after 10pm (we brought this forward to 8pm thereafter).  A speaker in the first plenary highlighted the context in which the available evidence is thwart when desperate people are forced to live in substandard 'housing' in over-crowded communities with no reticulated water, waste removal or access to health and duration services. One province mentioned has only two oncologists for six million residents.

Trying to summarise the learnings from the Summit is a difficult task but I shall highlight a few. I enjoyed presentations and discussions around what to include in reviews of 'complex' interventions - not just whether something works, but how it influences and is influenced by factors within the social system it invariably operates within. It is this information that can be useful for decision makers working in very messy contexts, with a variety of population groups and with a variety of stakeholders and resources to be taken into consideration. This is something we have always endeavoured to cover in our Cochrane Public Health (CPH) reviews.

I participated in a meeting with a co-author on a published CPH review, who was now working for the Bill and Melinda Gates Foundation. She had sought CPH out to identify ways they could help to identify best evidence for immunisation uptake specific to populations and contexts of interest. Consistent with the themes of the conference were discussions around prioritisation of criteria to guide what evidence to collect and synthesise, taking into account time/urgency, resources, policy implications and political 'doability'.

With the CPH joint Coordinating Editors, we had an extremely useful and collegial meeting with our CPH Europe members, including one of the leads who has been nominated to the Cochrane Board - so a great contact for our group to have. We discussed how we might best utilise the people resources we have to improve editorial processes, quality of the reviews and expand dissemination of review findings (in several languages) across the globe. Let me mention here also, a most productive and congenial dinner meeting with six of our CPH editors, at a wonderful African restaurant, where bongo lessons were the entrée to our shared meal.

The final plenary was particularly current and unfortunately poignant, as the panellists, led by Trisha Greenhalgh, discussed where evidence sits in a "post-truth" world. Recognition of a need to identify evidence that is credible, relevant and inferential, sits within a need to acknowledge that ‘evidence’ exists within a plethora of factors that need to influence decision making (including local data, resources, political context, acceptability etc.). There is an inevitable picking and choosing of evidence to persuade – which should always be tempered with an understanding of the audience's points of view. Invariably evidence is used by individuals to bolster their existing thoughts, not to question them. People have lost trust in 'experts' and in government institutions.  One of the solutions offered up that resonated with me...we need to learn to listen just as much as we need to learn how to tell evidence stories in many different ways. And that evidence will not speak for itself - we need to speak for it. The importance of us all being  ambassadors for evidence was emphasised -  
talk about your work with your community and listen to what they believe are the barriers to action. Give them the knowledge to fight for science too. There is a need more voices for science, so engage them in the process at all stages. Ask people how your research findings might affect their lives. Ask them what research questions would be important to them.

I remembered the taxi driver and his concern for reduced water availability and his theories of causation. I was glad he told me. I wished I had more local knowledge of the situation that I could have shared with him. Perhaps my empathy was enough...in this context. Taxi drivers are a great potential source of advocacy...there are many, many others.

I also thought about the previous time, in 2000, when the Cochrane Colloquium was held in Cape Town. A new face to Cochrane attended and was also inspired by the city and with Cochrane’s pursuit of best evidence and the need to ‘spread the word’. This was Liz Waters and she did a most brilliant job of inspiring others to travel and to share evidence and stories, from and to all corners of the globe. I thank her for this experience, and so many others she made possible for me.

This scholarship was used to support Ms Ana Tilman a Dental Therapist working as the program officer of Kose Nehan, a school oral health program in Timor Leste, to travel to Melbourne for a 3 weeks study tour. The Jack Brockhoff Child Health and Wellbeing Program is concerned with the key drivers for child health and this scholarship has contributed to this via allowing an international child oral health worker the opportunity to learn and collaborate with the Jack Brockhoff Child Health and Wellbeing Program team and other health service providers.

The purpose of her visit was:

• Attending a training program in epidemiology at the Jack Brockhoff Child Health and Wellbeing Program, Melbourne School of Population and Global Health
• Exposure to Victorian public oral health including an Aboriginal community controlled health organisation
• Attending  a conference  “Putting the Mouth Back into the Body” held at North Richmond Community Health
• Promotion of the Kose Nehan Oral Health Program

Outcome of award:

Networking and increasing awareness of child oral health in Timor Leste

• Presentation at “Putting the Mouth back into the Body” conference
• Presentation at two Timor Leste friendship organisation functions – Friends of Baucau committee meeting and Friends of Aileu dinner function
• Primary school visit

Ana’s conference attendance, her visit to an Australian school and Timor friendship organisations to promote Kose Nehan enhanced her confidence and advocacy skills. She was successfully able to describe and educate the Australian audience in the poor oral health situation in her country and the challenges of developing an oral health program to meet those needs. Her engagement with the friendship groups encouraged them to support an expansion of the Kose Nehan to 12 more schools.

Image: Martin Hall and Ana Tilman

Observation of public oral health in Victoria

• Clinical activities at North Richmond Community Health
• Pearly White aged care outreach program
• Chompers school oral health program
• Robinvale Aboriginal Oral health Program at Murray Valley Aboriginal Cooperative

Ana was exposed to many facets of the Victorian oral health service, this experience broadened her knowledge of the range of services and sites where outreach dental care can be successful. She had the opportunity to directly observe clinical treatments, Australian standards of care including infection control and modern materials used in a preventive based program. These are directly applicable to the further development of dental services in Timor Leste and contributed to her ability to influence decisions made in the Kose Nehan program.

Skills Development and Capacity Building in Health Promotion

• Attended training  in health promotion and basic qualitative evaluation
• Delivered Health education classes in Australian schools

Anna‘s training in health promotion and evaluation while in Melbourne have supported the further implementation and evaluation of Kose Nehan oral health program. She is now collecting and collating monthly data and writing reports on those activities for evaluation purposes.

Extension of the Kose Nehan Program

• Two new districts are now included in the Kose Nehan program

Ana’s health promotion and evaluation skills now being used at two additional districts (Baucau and Maubisse) following the expansion of Kose Nehan. A total of 18 schools (~3,000 children) are now under her supervision for tooth brushing and preventive based care. The scholarship also developed her confidence and leadership capabilities. As a result local dental staff led by Ana are now taking ownership for Kose Nehan and supporting its expansion to those other districts

All activities Anna engaged in while in Victoria and the skills/experiences she developed and how it is being used to improve child oral health in Timor Leste.