Advance care planning for children with severe neurodisability: viewing prognostic uncertainty as an opportunity rather than barrier

University of Melbourne, Department of Paediatrics, Royal Children’s Hospital (2nd floor, West building) – take the white lifts.

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Ruth Hentschel

T: +61 3 8344 4037

CHE PhD Confirmation: Sidharth Vemuri

Children with severe neurodisability have high care needs and multiple interactions with health services. These children are at risk of dying from their condition, though this may not happen during their childhood. One important role of clinicians is to help parents to think and plan ahead about what to do if their child’s condition becomes worse. This research aims to create knowledge about the most effective and helpful ways to communicate with parents of children living with prognostic uncertainty.

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